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HomeHealthcareLymeX Exemplifies the Energy of Partnerships after One Yr

LymeX Exemplifies the Energy of Partnerships after One Yr


One yr in the past, the U.S. Division of Well being and Human Providers (HHS) and the Steven & Alexandra Cohen Basis launched the $25-million-dollar LymeX Innovation Accelerator (LymeX) partnership. As this historic partnership celebrates accomplishments with a LymeX First Anniversary video, let’s see how LymeX is carrying momentum ahead.

Lyme illness is complicated, with roughly 476,000 U.S. instances annually. It’s time to be taught from the tens of millions with lived expertise and convey patient-driven innovation and analysis to the forefront of Lyme illness.

Within the phrases of Admiral Rachel L. Levine, MD from the June 2021 Congressional Digital Lyme Collection, “My workplace is embracing transformative innovation, going massive with your complete Biden administration to speed up scientific breakthroughs in innovation with cross-cutting collaboration and partnerships.” The LymeX public-private partnership contains Lyme sufferers at each step.

2021 LymeX Priorities

Our approach ahead includes a human-centered method to interact various voices throughout all sectors and disciplines. From this basis of human-centered and patient-centered methodologies, three precedence themes emerged: (1) Affected person-Centered Improvements; (2) Schooling and Consciousness; and (3) Subsequent-Technology Diagnostics.

Belief is paramount for making progress. LymeX contains constantly “displaying up” to pay attention, be taught, and create a protected area to deal with the subsequent era of options.

LymeX additionally makes use of “open innovation” for two-way communication within the open, just like the LymeX.crowdicity.com crowdsourcing platform, to be taught from the general public in a clear, community-driven method.

2021 LymeX Highlights

Grounded in human-centered innovation, LymeX 2021 achievements embody: 

An image of the LymeX 2021 Timeline and Milestones. LymeX is a $25 million-dollar, multi-year partnership between HHS and the Steven & Alexandra Cohen Basis.

 

LymeX Human-Centered Design Workshops, Interviews, and Listening Classes (January 2021 to current): Ranging from the point of view of patient-centered innovation, the LymeX Well being+ (“well being plus”) crew accomplished virtually 700 hours of interviews, listening classes, and workshops.

LymeX Request for Data (RFI) Accelerating Innovation in Diagnostic Testing for Lyme Illness (February 2021): We launched an RFI to grasp the present panorama and rising applied sciences to enhance Lyme illness diagnostics, receiving 32 responses from the general public on how analysis and investments in quickly developed COVID-19 diagnostics may be tailored or repurposed for Lyme and tick-borne illnesses.

LymeX Roundtable: Bridging the Belief Hole (April 2021): Greater than 1,500 viewers watched the LymeX Roundtable Webinar that includes inclusive methods and rising applied sciences for tick-borne illnesses. Afterward, roughly 70 contributors — together with sufferers, medical doctors, researchers, and policymakers — explored methods to enhance cooperation and communication round Lyme illness.

Well being+ Lyme Illness: Human-Centered Design Report (Could 2021): This LymeX Well being+ report amalgamates particular person anecdotes and views from Lyme sufferers, transforms them via qualitative and quantitative analysis into affected person “archetypes” and collective “journeys” for Lyme analysis, therapy, persistent signs, and incapacity, and identifies alternative areas with actionable suggestions for the longer term. 

LymeX Roundtable: Bridging the Belief Hole Abstract Report (June 2021):  A impartial third-party group summarized highlights from the April 2021 LymeX Roundtable and outlined 14 alternatives for a path ahead utilizing patient-driven innovation and patient-driven analysis.

LymeX Schooling and Consciousness Healthathon (June to August 2021): This LymeX Healthathon (just like a hackathon, however as a health-focused dash) known as on the general public to create instructional supplies to lift consciousness about tick-borne illness prevention and assist others profit from the most recent scientific findings. Members from all walks of life, together with two successful Okay-12 innovators, helped lead by instance with Lyme Innovation progress.

LymeX Analysis Workshop: Advancing Analysis for Lyme and Tickborne Ailments (October 2021): Constructing upon the LymeX Roundtable, this workshop invited 50 contributors, together with 17 Lyme sufferers and advocates, to share enter on patient-driven analysis. A impartial third-party group will synthesize discussions and publish on-line in late 2021.

LymeX Diagnostics “Moonshot” Prize Competitors (in improvement, extra to be introduced late 2021): Via an interagency settlement with the NASA Middle of Excellence for Collaborative Innovation, we’re designing the primary section of a prize competitors known as the LymeX Diagnostics “Moonshot”. Following the KidneyX mannequin, the Moonshot will probably be a multi-phased, multi-year, multi-million-dollar competitors to develop diagnostics cleared by the Meals and Drug Administration (FDA) for measuring lively an infection of Lyme-causing micro organism within the human physique.

To remain knowledgeable and take part in upcoming LymeX occasions, please go to LymeX.org, comply with @Lyme_X on Twitter, be a part of LymeX.crowdicity.com, or electronic mail LymeInnovation@hhs.gov. We’re trying ahead to the subsequent yr!



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